The effectiveness of the information system for managing data from a registration study of acute myeloid leukemia in children

Y. V. Starichkova; Старичкова Ю. В.; I. I. Kalinina; Калинина И. И.; A. V. Pavlyuk; Павлюк А. В.; E. A. Zerkalenkova; Зеркаленкова Е. А.; Yu. A. Danilkin; Данилкин Ю. А.; А. M. Fominykh; Фоминых А. М.; M. A. Maschan; Масчан М. А.; G. A. Novichkova; Новичкова Г. А.

doi:10.24287/1726-1708-2019-18-1-144-151

The effectiveness of the information system for managing data from a registration study of acute myeloid leukemia in children

Authors: Starichkova Y.V.¹^,2, Kalinina I.I.¹, Pavlyuk A.V.¹^,2, Zerkalenkova E.A.¹, Danilkin Y.A.¹^,2, Fominykh А.M.¹^,2, Maschan M.A.¹^,3, Novichkova G.A.¹^,3
Affiliations:
1. Dmitriy Rogachev National Medical Research Center of Pediatric Hematology, Oncology, Immunology Ministry of Healthcare of Russian Federation
2. MIREA - Russian Technological University
3. Russian National Research Medical University named after N.I. Pirogov
Issue: Vol 18, No 1 (2019)
Pages: 144-151
Section: ORGANIZATION OF HEALTHCARE
Submitted: 21.04.2019
Accepted: 21.04.2019
Published: 21.04.2019
URL: https://hemoncim.com/jour/article/view/236
DOI: https://doi.org/10.24287/1726-1708-2019-18-1-144-151
ID: 236

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Abstract

The article presents the results of the development and implementation of tools for an integrated approach to the formation of a single information space in the field of organizing the registration study "Primary diagnosis of acute myeloblastic leukemia in children", organized in the National Research Center of Pediatric Hematology, Oncology and Immunology named after Dmitry Rogachev Ministry of Health of the Russian Federation. On the example of this study the advantages of using the methods of optimization of information flows of data obtained in the medical technological process in the development of specialized information systems are shown. The conceptual model of the study data "Primary diagnosis of acute myeloid leukemia in children" and the model of interpretation of the data structures obtained as a result of high-tech medical care in the structure of the study data model are presented. On the basis of the proposed conceptual data model and its details, an information system for data flow management of the study "Primary diagnosis of acute myeloid leukemia in children" was developed and the prospect of its development in accordance with the need to transform the tasks of the registration study into the task of creating a unified therapeutic approach within the framework of the introduction of a single Protocol of therapy in hospitals.

Keywords

organization of clinical research and registration studies, medical information systems, identification and medical data of patients

About the authors

Y. V. Starichkova

Dmitriy Rogachev National Medical Research Center of Pediatric Hematology, Oncology, Immunology Ministry of Healthcare of Russian Federation; MIREA - Russian Technological University

ORCID iD: 0000-0003-1804-9761

Moscow

Russian Federation

I. I. Kalinina

Dmitriy Rogachev National Medical Research Center of Pediatric Hematology, Oncology, Immunology Ministry of Healthcare of Russian Federation

ORCID iD: 0000-0002-0813-5626

Moscow

Russian Federation

A. V. Pavlyuk

Dmitriy Rogachev National Medical Research Center of Pediatric Hematology, Oncology, Immunology Ministry of Healthcare of Russian Federation; MIREA - Russian Technological University

Author for correspondence.
Email: alexey.pavlyuk@fnkc.ru
ORCID iD: 0000-0002-6532-6875

Alexey V. Pavlyuk - the chief of Department of development of information technology, graduate student Dmitriy Rogachev NMRCPHOI.

117997, Moscow, Samory Mashela st., 1

Russian Federation

E. A. Zerkalenkova

Dmitriy Rogachev National Medical Research Center of Pediatric Hematology, Oncology, Immunology Ministry of Healthcare of Russian Federation

ORCID iD: 0000-0001-9634-5828

Moscow

Russian Federation

Yu. A. Danilkin

Dmitriy Rogachev National Medical Research Center of Pediatric Hematology, Oncology, Immunology Ministry of Healthcare of Russian Federation; MIREA - Russian Technological University

ORCID iD: 0000-0002-5899-6483

Moscow

Russian Federation

А. M. Fominykh

Dmitriy Rogachev National Medical Research Center of Pediatric Hematology, Oncology, Immunology Ministry of Healthcare of Russian Federation; MIREA - Russian Technological University

ORCID iD: 0000-0003-1548-3378

Moscow

Russian Federation

M. A. Maschan

Dmitriy Rogachev National Medical Research Center of Pediatric Hematology, Oncology, Immunology Ministry of Healthcare of Russian Federation; Russian National Research Medical University named after N.I. Pirogov

ORCID iD: 0000-0003-1735-0093

Moscow

Russian Federation